A new U.S. study has uncovered troubling gaps in how patients with irritable bowel syndrome (IBS) seek care and receive diagnoses, pointing to clear differences based on gender and race.

The research, published in Clinical Gastroenterology and Hepatology, highlights that not all patients with IBS are treated equally when it comes to accessing healthcare or receiving a confirmed diagnosis — a disparity that experts say could have serious consequences.

The study, led by Dr. Christopher V. Almario of Cedars-Sinai Medical Center in Los Angeles, analyzed data from more than 5,400 adults who reported having IBS in the 2020 U.S. National Gastrointestinal Survey II. The findings paint a revealing picture of who seeks care — and who ultimately gets diagnosed.

Women made up the majority of respondents and were more likely than men to seek medical help for their symptoms. They were also significantly more likely to receive an official IBS diagnosis from a healthcare provider. In contrast, men were less likely to seek care and less likely to be diagnosed even when they did.

Racial disparities were also evident. White patients were more likely to receive a provider-based IBS diagnosis compared to Black or African American patients. Hispanic individuals also showed lower diagnosis rates compared to non-Hispanic patients, suggesting potential barriers in access, awareness, or healthcare delivery.

Overall, while a large proportion of participants reported seeking medical care, only about one in three actually received a formal diagnosis. This gap raises concerns about missed or delayed diagnoses and the impact it can have on patient outcomes.

Experts warn that going without a clear diagnosis can create a ripple effect. Dr. Lin Chang of UCLA Health explained that patients without a confirmed IBS diagnosis may struggle to access effective treatments, as insurance coverage can depend on formal medical documentation. At the same time, they may undergo repeated tests and emergency visits as doctors search for answers, leading to higher healthcare costs without necessarily improving their condition.

The study sheds light on a broader issue within healthcare systems — that disparities in access and diagnosis can directly affect how patients experience illness and treatment. As awareness grows, researchers and clinicians are calling for more equitable approaches to ensure that all patients, regardless of gender or background, receive timely and accurate care.

The findings also come with a note of caution, as several authors reported ties to the pharmaceutical industry. Still, the message remains clear: addressing these gaps is essential to improving outcomes for millions living with IBS.